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Your child has a unique medical history. Therefore, it is essential to talk with your doctor about your experience with autism. Talk openly and regularly with your doctor. This will help you take an active role in your child's care.

General Tips for Gathering Information

Here are some tips that will make it easier for you to talk to your doctor:

  • Bring someone else with you. It helps to have another person hear what is said and think of questions to ask.
  • Write your questions ahead of time, so you don't forget them.
  • Write down the answers you get. Make sure you understand what you are hearing. Ask for clarification if necessary.
  • Don't be afraid to ask your questions. Also, ask where you can find more information about what you are discussing. You have a right to know.

Specific Questions and Comments for Your Doctor

About Your Child

  • How would you classify my child's case on a range of mild to severe?
  • What can I expect from my child in terms of development?
  • Will my child be able to attend a normal school?

About Treatment Options

  • Will you be able to manage my child’s care long term?
  • Can you be our constant advisor to evaluate my child's progress? Can you suggest treatment changes when beneficial? Or, will you recommend someone who can?
  • Are there other healthcare professionals you can refer us to who can help with treatment?
  • Should my child take medicine? If so, what are the benefits and side effects?

About Lifestyle Changes

  • What is the best way to incorporate these lifestyle changes into our lives?
  • How will these changes affect my other children?
  • What are the best local information resources and sources of support for the changes we are going to have to make in our lives?

About Outlook

  • Can you recommend a support group? Can you tell me about other means of emotional support for our family?
  • Are there any funding sources available for the types of support we may need?
  • As my child grows, how independent will he or she be?
  • Should we make financial and/or guardianship arrangements in case something happens to us?
  • Should we have another child? What is the chance that another child will also have autism?

References:

Autism spectrum disorders (pervasive developmental disorders). National Institute of Mental Health website. Available at: http://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-pervasive-developmental-disorders/index.shtml . Updated May 14, 2013. Accessed May 14, 2013.

Autism through the lifespan. Autism Society of America website. Available at: http://www.autism-society.org/living-with-autism/lifespan . Accessed May 14, 2013.

Behrman RE, Kliegman R, et al. Nelson Textbook of Pediatrics . 18th ed. Philadelphia, PA: Saunders; 2007.

Goetz CG. Goetz’s Textbook of Clinical Neurology . 3rd ed. Philadelphia, PA: Saunders, 2007.

Jacobson JL, Jacobson AM. Psychiatric Secrets . 2nd ed. Philadelphia, PA: Hanley & Belfus; 2001.

Moore DP, Jefferson JW. Handbook of Medical Psychiatry . 2nd ed. Philadelphia, PA: Elsevier Mosby; 2004.

Stern TA, et al. Massachusetts General Hospital Comprehensive Clinical Psychiatry . Philadelphia, PA: Mosby Elsevier; 2008.



Last reviewed May 2013 by Kari Kassir, MD ; Michael Woods, MD

Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition.

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